[PDF-members] [PDF-youth] Press Release - International Albinism Awareness Day

[Caleb Nellie]

Thanks Solon for the information sharing
will share with our network members
kind regards

Nelly Caleb

*National Coordinator| Vanuatu Disability Promotion & Advocacy Association
(VDPA)*

Sanma Provincial Headquarter | P.O.Box 71 | Santo,Vanuatu

Tel: +678 37997 <+678%2037997> | Mob: +678 <+678%20531%204774>7796946 /
+678 5421040 |

Gmail: calebn.vdpa at gmail.com

Skype: Nelly Caleb

Facebook: Nelly Caleb




On Thu, Jun 11, 2020 at 4:44 PM Soloveni Vitoso <infor at pacificdisability.org>
wrote:

> *International Albinism Awareness Day*
>
>
> *Press Release*
>
>
> The Pacific Disability Forum (PDF) for the first time is celebrating
> International Albinism Awareness Day to raise awareness on persons with
> albinism and the issues they face in their everyday life.  On December
> 18, 2014, the United Nations’ General Assembly adopted a resolution
> establishing June 13th as International Albinism Awareness Day which
> confirmed the global focus on albinism advocacy.  With this year’s theme,
> “Made to Shine”, PDF wishes to salute and acknowledge persons with albinism
> on their contribution to society despite the various types of
> discrimination they face.  In the Pacific, it is believed that one in
> seven hundred is persons with albinism.
>
> Albinism affects the skin, hair and eyes forcing persons with the
> condition to have vision problems, with their skin vulnerable when directly
> or indirectly exposed to the sun.  This leads to sunburn and may
> transform into skin cancer.  PDF Chief Executive Officer, Mr. Setareki
> Macanawai says that, persons with albinism when facing an inaccessible
> environment and negative attitude from those around them greatly impact and
> hinders their full and effective participation in society and prevents them
> from utilizing their abilities and potentials.
>
> PDF is standing in solidarity with Pacific people with albinism and all
> those with the condition through their challenges. Mr. Macanawai added that,
>  “while the world is going through unprecedented time, people with
> albinism continue to face all types of human rights violations which
> included challenges in accessing quality healthcare services during this
> pandemic, accessing sunscreen due to availability, accessibility and
> affordability and other non-pharmaceutical intervention.”
>
> An information-sharing session on albinism will be held at the Pacific
> Disability Forum for its staff at 9:00 am tomorrow morning where you can
> join us live on our PDF Facebook Page
>
> For more information, you may contact the Mr. Soloveni Vitoso; Pacific
> Disability Forum - infor at pacificdisability.org
>
>
> End.
>
>
> *Soloveni Vitoso*
>
> Public Relations & Communications Officer
>
>
>
> Pacific Disability Forum
>
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>
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> [image: cid:image001.jpg at 01D60A29.68C18C20]
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