[PDFlist] Press Release - International Albinism Awareness Day

[Soloveni Vitoso]

International Albinism Awareness Day


Press Release


The Pacific Disability Forum (PDF) for the first time is celebrating International Albinism Awareness Day to raise awareness on persons with albinism and the issues they face in their everyday life.  On December 18, 2014, the United Nations’ General Assembly adopted a resolution establishing June 13th as International Albinism Awareness Day which confirmed the global focus on albinism advocacy.  With this year’s theme, “Made to Shine”, PDF wishes to salute and acknowledge persons with albinism on their contribution to society despite the various types of discrimination they face.  In the Pacific, it is believed that one in seven hundred is persons with albinism.

Albinism affects the skin, hair and eyes forcing persons with the condition to have vision problems, with their skin vulnerable when directly or indirectly exposed to the sun.  This leads to sunburn and may transform into skin cancer.  PDF Chief Executive Officer, Mr. Setareki Macanawai says that, persons with albinism when facing an inaccessible environment and negative attitude from those around them greatly impact and hinders their full and effective participation in society and prevents them from utilizing their abilities and potentials.

PDF is standing in solidarity with Pacific people with albinism and all those with the condition through their challenges. Mr. Macanawai added that, “while the world is going through unprecedented time, people with albinism continue to face all types of human rights violations which included challenges in accessing quality healthcare services during this pandemic, accessing sunscreen due to availability, accessibility and affordability and other non-pharmaceutical intervention.”

An information-sharing session on albinism will be held at the Pacific Disability Forum for its staff at 9:00 am tomorrow morning where you can join us live on our PDF Facebook Page

For more information, you may contact the Mr. Soloveni Vitoso; Pacific Disability Forum - infor at pacificdisability.org


End.



Soloveni Vitoso

Public Relations & Communications Officer



Pacific Disability Forum

Ground Floor, Kadavu House, Victoria Parade

GPO Box 18458, Suva, Fiji



Tel: +679 331 2008; +679 773 0200

Mob: +679 772 0132; +679 976 7236

Fax: +679 3310469

Skype: soloveni.vitoso

Email: infor at pacificdisability.org<https://outlook.office365.com/mail/options/mail/infor@pacificdisability.org>

Web: www.pacificdisability.org<https://outlook.office365.com/mail/options/mail/www.pacificdisability.org>

Facebook: Pacific Disability Forum<https://www.facebook.com/PacificDisabilityForum/>

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